Hi! I’m Amanda! I’m 25-years-old and live in Minnesota. I started this blog to document my journey living with juvenile rheumatoid arthritis.
What is juvenile rheumatoid arthritis? The National Institute of Health says “Juvenile rheumatoid arthritis (JRA) is a term used to describe a common type of arthritis in children. It is a long-term (chronic) disease resulting in joint pain and swelling.” The reality is so much more than the definition. It’s a constant state of pain, fatigue and just general crummy feeling-ness. There are days that it’s hard to get out of bed. I have to constantly re-evaluate and change plans because, like any chronic disease, my mood and livelihood can go downhill fast.
I’ve already had two major surgeries – one to replace my TMJoints in my jaw and cosmetically fix my sunken chin at the age of 16 and another to remove a damaged portion of my wrist this past December at age 24. It’s very likely that I’ll need more as I go on. There currently is no cure for this disease. All I can do is hope to manage my life and live it the best I can.
I’ve gotten way too lazy and use my JRA as an excuse too much. That’s what this blog is about. I’m actively making changes to my life to better myself. I hope I can inspire others to do the same.
If you have any chronic condition, please DO NOT start an exercise regiment until you have consulted with your doctor. Any exercise plan needs to be a joint venture between you and your doctor. Not doing so can make things a lot worse.